Error message

  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$original_language is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$original_language is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$original_language is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$original_language is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$uid is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).
  • Deprecated function: Creation of dynamic property SimplenewsSourceNode::$original_language is deprecated in DrupalDatabaseCache->prepareItem() (line 449 of /var/www/leavenothingunsaid.com_09252022/public/includes/cache.inc).

"Don't Forget the Siblings!"

An astute and loving grandmother provided that response to last week’s post about parents of special needs children: Unsung Heroes. But that grandma was right. The siblings of special needs kids can easily be forgotten. And they, too, deserve to be celebrated.

Even the best of parents have limited capacity. We’re all human. And caring for a special needs child can be all-consuming physically and emotionally. It’s easy to assume the other children are on auto-pilot and doing fine. 

The siblings. The ones who are healthy, stay out of trouble, do their homework, and consider themselves part of the family team. Often, they don’t rock the boat. They don’t complain. Many assume duties far beyond their years. Yet they are still children, with their own unique needs. How can we love and encourage them?

Are you the grandparent, aunt, uncle, or special friend of a family with a special needs child? A beautiful way to come alongside the parents is by giving some focused attention to the siblings. While you’re certainly not a replacement for the parent, your love can be a wonderful supplement.

  • Be intentional about planning one-one-one outings with each sibling. Nothing says “you matter” like time spent together. 
  • Tell that child the things that you treasure about them. Share what you see as their unique gifts and abilities. Affirm the unselfish ways you see them love and care for their special needs sibling. Better yet, put all that in writing!
  • Make an effort to attend their events, games, and recitals. Celebrate their successes and victories.

Are you the parent of a special needs child? Here are some simple tips gathered from other special needs families about ways to celebrate the siblings: 

  • Be intentional daily about having focused, one-on-one time with each child, even if that’s just 5 minutes a day. Take the time to ask questions and really listen to the answers.
  • Plan special, longer one-on-one outings when you can.
  • Write an affirming letter to each of your children. It’s something every parent should do. And none will benefit more than those “low maintenance” kids. Children of all ages long to be told what their parents value and cherish about them. Take the time to express your love in writing and you’ll be giving your child words that can be read and re-read. Words that matter forever.

Families with special needs children are heroes. You really do deserve a parade! Better yet, you deserve tangible, simple, loving acts from your friends and families. Let it begin with me.

 

Comments

 I am a sibling. My little sister has Down Syndrome and autism. She was born in the early 60's with multiple health problems. Back then hospitals still practiced "do not feed." Thankfully my parents fought to bring my sister home. We continue to be loving "protective" siblings. Know why? Because my parents were fair. They never "sacrificed" us siblings in an effort to "cure" her. I am about to retire from teaching special education to little ones, and I often quote my mom when talking to parents of my students: "Be careful not to neglect your other children for your child with special needs. One day you will be dead and gone. It will be your other children who will be making life decisions for your child with special needs." Exactly. Both my parents have been dead now for 10+ years. And so now my little sister lives with my older sister and we share guardianship. Yep: Siblings rock! :o)
 

Cathy, thank you so much for sharing this perspective. First of all, I'm so sorry for your loss of your parents. Mine died within 8 months of each other 3+ years ago, and I still miss them so much. Secondly, you had a very, very wise mother! What great advice she gave you that you are now passing on. Thirdly, a counselor once told me that "God wastes nothing" and that is so evident in your own life. You lived with a special needs sibling and then devoted your life to helping others with special needs. That's truly beautiful! I celebrate you and your older sister today!